Tuesday, September 27, 2011

A New Direction , or stay still, listen for that small still voice

Matt. 6:26 says this,  look at the birds of the air, that they do not sow, nor reap nor gather into the barns, and yet your Heavenly Father feeds them. 
So thankful for those of you who leave messages for Abigaile and our family. They are very much well- received. Its so nice to know that someone has taken the time to write and sign our guestbook as that is pretty much the only time we hear from anyone.   
  Dad and I took a short coffee date away today from the girls and left them in good hands for a couple of hours today.  We have some really tough decisions to make.  Let me give you a brief story on how we ended up in Southern California.  Abigail was having many seizures sometimes a hundred or so per day of the drop seizures.  This was from many different triggers.  Her treating Pediatrician Dr Jerry is here in Southern California.  We have spent the past 7-8 years of when Abigaile has had an event, we would go to the ER, explain to a Dr her story, only to have them order meds that she couldn't take. It is a nightmare.  Dr Jerry has treated her long distance, it is very difficult logistics wise on how this happens (you wouldn't or couldn't believe me if I told you) it is just too crazy.  We had planned to move to Fla. when Dr Jerrys office was in Florida and it didn't happen, nothing came together. Then Dr Jerry explained he and his family were relocating to Southern California so we thought we will pray about it and see what happens. Abigailes seizures were increasing and we felt that we needed to do something even if it were a temporary move, and to move back. Allen took FMLA was told that his company would likely have a position for him here after he came off FMLA. We really had open doors everywhere we planned to come to S. Cal.  so we decided that we felt peace with it, gave away what we didn't need, store a couple of family treasures at a friend, who thank God isn't charging me rent. She has done so well, gaining weight, we went for two months, not having a drop seizure and even when she has had seizures it was partial seizures and due to foods that we tried her on. She is not the same little girl at all. She has gained almost 20lbs and where she is suppose to be at weight and height finally Praise be to God on the scale. God has surely blessed us. When we came out we rented a vacation rental, and looked for a home to move to. We found one just a few miles away from the beach (this is great because when Abigaile gets in the smog area she has drop seizures or in the hot areas with no breeze it causes seizures. We have been where we couldn't get out in the winter it affects her vitamin D storage we started her on Vitamin D drops that has helped tremendously but we see her thriving here, trying to walk, pulling up to everything, having Organic foods more readily available. It is still super- expensive to get foods though and meats that are corn free. A nightmare. It is $165.00 for a corn- free turkey. We will be having chicken for Thanksgiving and Christmas dinner. We just can't afford it. I pay $8.50 per doz for her eggs that are corn free. She has to eat. We can't get these resources in Arkansas or many other places. 
Abigaile getting TMS treatments the first week we arrived. 

  Allen has now been unemployed for a year this week. My salary is not enough to live on here in Southern California. It is not enough for rent. Our lease will expire in December. We don't want to move because Abigaile is doing so well, and thriving. We may not have a choice though.  We have to have money to live.  We need money for daily living, and necessities that we are starting to lack and they are catching up to us. Allen has not been able to get a job and has gotten less than a handful of interviews, we can't even get a part time position.  
My little Abigaile has never been able to stand like this. She doesn't have all the seizures here and it is warm enough for her to be out. She didn't even flinch and stood for almost 5 minutes alone. 


  I am working on getting things made for our home business but with the therapy and treatments it has been difficult, and then when my health went berzerk it didn't help.  God has seriously always provided for us, and made food, money, and so many different things when we needed it. I have sold things to people, catered food to businesses (we love you Perrys Jewelry) when we needed provision and it was just always there. I know God is the same yesterday, today, and tomorrow and He will supply all of needs according to His glory, not mine or anyone else's.  We have to make a decision. We need a job, will need a place to live and it may be that we just have to come visit California a couple of times per year or come live here during the winter so we can get out year round. I have given it to God. There is a medical trust to help pay for Abigailes care, but it doesn't pay for everything and we have a big tab for her care every month. It doesn't pay for all of her food, and it doesn't pay for the cleaning products that are very pricey that don't contain this or that so that she doesn't have seizures.
My precious little spit-fire girl, who says "I'm Healed, even when she is having a seizure " Yes, sweet Abigaile you are healed according to the Word of God. 


 I'm giving to God these things, I'm also giving Him the things that we haven't seen yet, I'm also giving Him all my cares and worries because I know that He is the author and the finisher.  Thank you to all those who pray for us, and have prayed for us.  We are thankful. We just need a break from all of this and rest. 

much love 

Paris 




Monday, September 12, 2011

Happy Birthdays,,,

  Abigailes birthday was last Wednesday, she received a Birthday wish on the voice mail from her grandma in Chicago.  She received Birthday wishes from adopted aunts and friends on FB. The gift she received was an American Girl look alike from Target that dad, and I and Natascha bought for her. She loves it! She has dressed it and brushed her hair. She is really cute with this.  I could get angry and my feelings hurt and they initially do but I refuse to carry that hostility and bitterness toward family that I could.  We just don't have and haven't had for many years now money to buy extended family gifts and so that is how it is.  I'm hoping a child of Abigailes age, understands this , right?
  Nataschas birthday is next, this Wednesday.  We have some plans for her likely along the same lines that was Abigailes but we won't say what the gift is in case she gets notification on her page that I updated the blog:0)
  I want to stay in the blessing of God so therefore I choose to cast out bitterness. I love and give of what I have and do not judge people for what they give or don't give. I'll leave it at that.
  We are still doing therapy and treatments for Abigaile she is doing so well. She has gained weight, she is growing taller and not having seizures I can't tell you what a gift , a blessing this is.
  We are needing to make some decisions due to a lack of a job and our lease is up in December of this year.  We aren't sure where God wants us next.
  We start school in a couple of weeks again. We have taken a couple of breaks here and there  instead of doing school straight through this time.  Our life is just not traditional and we can't treat it as such.
  We were blessed by finding a new farm for veggies, which saves us a lot of money. People tell us that it is expensive but not according to what we have paid. I'm sure they are paying a fraction of what we are but we don't have a choice. We have a restricted diet for Abigaile and her health depends on it. We sacrifice what we have to and her health is provided for.  I also found a farm that has corn free meats, and goat milk and am thrilled about that. It was a $100.00 membership and the last time I ordered for two  Organic Chickens and a dozen eggs it was $78.00.  We had to order cheese from Arkansas through our trusty co op there because the vendor was going to charge $126.00 just to ship the cheese and that was $100.00 itself.  This way we had our co op at Ozark Natural Foods order it ($110..00 for the cheese) and then $60.00 to ship it. so a $170.00 for the only cheese we have found for our darling Abigaile.
  We still need prayers for someone to fix our van, that wasn't correct when we got it and we have bickered back and forth with the people who lied to us, and took money but still haven't fixed it. I would never buy anything or recommend these people to anyone ever, they are crooks! We have to find someone to fix the wiring in the van so that we can use the items we ordered for Abigaile. Ever wake up and just feel this can't be my life? Yep, I do that on a regular basis. I then see God in my life when my girls come sit beside me, or come to me and put their arms around me and just say I love you- then I know God is there.
  Please keep in mind our business, this is our income right now. It is not a lot as the therapy and treatments take up most of our day , school , and the day to day of having to make all of our meals from scratch (takes an incredible amount of time). We have to make all of Abigailes breads, tortillas, and pitas, any meats, all of her food is made from scratch and home made. She can't eat anything from the store, it has to be Organic raw vegetables and nothing near corn. It causes seizures. Trust me this is intense! It takes a lot of time to search recipes, take out ingredients and replace ingredients, do substitutions, then shop for it (can't just go to a store) this requires logistics from stores, ordering wholesale when we can, go to the vegetable farm and trusting they are disclosing everything to us, and searching new farms on the internet. It is a nightmare! It is time consuming. This is what helps my sweet little girl though and it is healthy for us too. She does not have seizures because of the careful planning, and dedication and sacrifice of our family for her.
  We also have to be cautious of clothing, chemicals that come into the house, cleaning products, soaps, and bath products.  We don't have a choice, we have to pick and choose what Abigailes needs, then it is what the rest of the family needs. The fund covers some items but not everything.  We are thankful for what we do get help with from the fund.  We still have to live as a family.
  We were blessed this past week with a helper for Abigaile, her name is Ms Lisa so I'm sure you will be hearing more about Ms. Lisa in the near future. She has been a big help even though our time is limited and our schedules have been hit and miss this past week but she still came through with flying colors. I'm sure she must think we are crazy.
  Well its time to start searching recipes, so that I can plan birthday party #2 for Wednesday so that we can all enjoy the cake - Natascha wants Daphnes ( which is street Greek) and Panda (wontons) for dinner for her birthday.  What a combo. Bless her Lord she has earned it.
  Please make sure to check out our facebook page and our blog for Urban Organic Studios for you Christmas and Birthday and all of your other gift needs. I will be putting items on shortly for sale.  I am working on a project now to be able to get low- no chemical bedding, clothing for children and home decorative items.  Please visit the blogs and facebook frequent.  I also will be opening an etsy store or another handmade in the USA store. I'll post when I do.
  We had a couple of very hot days last week, a thunderstorm and we also were in the blackout on the west coast when all the power went out for (unknown reasons).  It was another drill for us. What do we really need, what do we really have to have? We didn't have money for a hotel, but had to book one anyways as they had no idea what time the power would be back on and we can't go out to eat with Abigaile. Please pray that God gives us wisdom on how we can handle this from now on. We actually ended up with the electric coming back on close to midnight once we got packed and ready to go. They cancelled our reservation that was made after 8pm , but charged us for the room.
  We really just want a house already, with a yard, and breezes, we need a place for a greenhouse so that we can grow our own foods, and have chickens running around the yard. We know what goes in our food and where it comes from. A place for berry vines and bushes.  God says to ask for the desires of our heart, this would be it and for our business to flourish so that we can be self sustaining ...
  Thank you and bless you for your prayers, they are well received.  I am thanking the Lord for those who pray for us.

in His service
Paris