Saturday, November 3, 2012

Fun in the Son and then some

  We were exhausted this past weekend and decided to go for a picnic at the beach.  I had mid terms and needed to read. When we go to the beach its no longer 7 minutes its 15-20 minutes depending on traffic and traffic lights.  So we took food, lunch and I took some pictures. The clouds were just incredible. It was a little cooler that day and over cast the marine layer came in as well. I love the clouds and the sky over the ocean there is nothing like it.  Depending on the day, and weather the sky literally changes color before your eyes.  The water changes color depending on the sky. I wanted to sharre some photos. I'm going to be printing these off and matting them and will be selling inndividual, in sets or bundles as well. Be sure to check out the studio we have a lot in progress right now. 
  We took this week off from therapy as one then both girls got sick, Allen was in class all week. We have found a new favorite spot on the beach. The pictures are in San Juan Capistrano Beach. It was not my favorite place at first as the amtrak runs behind it now I don't even notice it. Ill add more pictures as I figure out how to.  Meanwhile if you see a photo that you like and you would like to oorder illl let you know if I have one available and the pricing. Hope you enjoy! Who would have ever known that my God would have sent us where there is no winters, and where my Abigaile would walk, my Natascha would grow up to be the most beaautifull young lady? I could walk on the beach with my family and get help for my baby as well. Thank you God what a gift You have given to me I am forever grateful.

Much love and blessings,
Paris






Friday, October 26, 2012

Just another day in paradise and we aren't talking Hawaii..

  I won't complain too much even though I spent the day handwashing dishes it was still mid to upper 70s. I did want to post though what my girlies did today at school.  They did fall crafts with dad..
  Nata made sets of coasterrs in a fall them with cork, berrries and beautiful autumn leaves.. we hhave these in sets off 4 or 6. You can visit our Urban Organics Store and email us from there if you are interested for pricing...
  Ms. Abi also made some stick puppets with daddy, she made Tom Turkey, Betsy Pilgrim, and Otto Owl.. these are made up names but the fiigures are those of a pilgrim, owl and turkey. She had fun and did great with foamies.  She can glue or tape because of the multiple chemical disorder causes her to have drop seizures.
  Me, I washed dishes all day and cooked for everyone.
Just another day in paradise ....
God bless!








Tuesday, April 17, 2012

The storms ...

I was awake until 4am this morning totally unsuspecting what I would be in for today, as usually everyday. It is sometimes that the spirit arouses my curiosity and anxiety towards a new event. I was saddened that I was not able to trek up to Sacramento to help voice my concerns to the health committee for the hearing on Ab2109.  It has been over the past few days I have been writing many rough drafts getting the anger out of me and the hurt by a system that  use to be family in (the medical profession).  I stopped because I am now about God, what God wants what His desire and will are for me.  I cope.  How is it I can see Gods love in this? My child injured by mans vaccine, not Gods comes to me daily with her inflictions and her adversities and loves on me unconditional of the treatment that she receives by me or anyone else. She has a full cognitive understanding of love. She has been given and fed nothing but love. I feel that is how it is with God we come to Him through our pain and afflictions being wounded, reach out to Him and He never denies us. He holds us with open arms. I say this after going to bed (no passing out at 4am) sending my information along to an email address that I don't know if it will reach the right person or not. It doesn't. I was woken at just after 9am to a concerned oldest daughter saying momma Abigaile is sucking and grinding her teeth ( abigaile having a seizure) we proceeded with battle of prayer, and praising God the storm we are in, rebuking the waves that Gods spoken voice - His spoken Word will castaway the waves, they aren't leaving yet we claim victory and give her emergency meds in Jesus name!  I claim victory over my day today, because today is the day that the Lord has made let us be glad and rejoice in it! Amen 

Sunday, April 8, 2012

The calm before the storm- Praise be to God ...

  I have watched my little girl over the past eight years go from a baby that was developing normal , to going through a terribly traumatic early childhood after being injured by a vaccine reaction.  This year before this Easter weekend we have seen some very significant changes that we have been seeing in her. It is all given glory to God! It has not been easy and there are things that have seriously tested our faith. We feel like through all of this we have walked through the depths of hell and honestly, I know we have come no where near it. There are days that I think I could not handle anything but God says He is in control.  We have had a really good time with Abigaile and she has progressed wonderfully.  The past couple of days are like walking through hell again but I guarantee God is our front guard and our rear guard and God is in control.
  So in the past 48 hours we had our account on lockdown, our debit cards cancelled because my husbands debit card was stolen and they cancelled mine as well even though it is different account numbers.  It doesn't stop here.  I normally don't talk about our personal life but I am going to this time.  It is to simply make a statement of just how much evil is in our world. There are so many people who are spiritually sleeping and will be caught off guard.  Here is a little history to make a long, story short.
  In 2008 we were close to winning our vaccine injury case for our daughter.  We were told by our team of attorneys in Memphis that to go ahead and get treatments or whatever care was needed for our daughter and so long as it was vaccine injury related it WOULD BE reimbursed when we won our case. We got treatments at NW Health and Lifestyles in Bentonville Ar.  This place is rotten to the core! We went in for assessment and told them our case they said they would work with us. We told them that our attorneys advised that it would be such and such date and time we should have things closed. Our Dr. Kartzinel was treating our daughter , has the majority of her life since she was about 7 mos old. They suggested a Care Credit account to keep everything in one account and that way it could be paid off. We don't have credit cards and did not like the idea of having one as we have had credit cards in the past and were happy to get rid of them. It was suggested that the more treatments we signed up for 40 treatments. Our Dr. K had ordered 40 treatments but was specific on his prescription of how he wanted them done. It is critical to our daughters health as she is very sensitive and allergic to many things.  The levels of Oxygen and the pressure she needs to be at so as not to cause seizures. We did 8 dives and the last dive that we did because the nurse was called to turn up our tank. It cause our daughter to have seizures and I was even lightheaded for days following this. We were rightfully upset. We spoke about it to the technician Kevin and also spoke to the son of the owner.  We told the son that the nurse disrespectfully came in and without warning turned up the pressure when they had specific orders. After that treatment they took us to an office for a meeting, and fired us. Yes, fired us! We asked for her medical records and they refused them even though we were paid in full. We had to hire an attorney who got a private investigator to go in and retrieve the records. We found in the chart where the owners son , who is not a licensed (anything) he is running this place he wrote very derogatory information and defamation of my husbands character. He is not legally allowed to write in the chart. They fired us, then kept the rest of the care credit funds. It looks like a set up now that I look back on it. I fought care credit, and appealed it but they sided with this owner. Our daughter was very sick and having hundreds of drop seizures sometimes in a day because of this.  It is a lot to care for her full time. When I called to speak to care credit or a representative to try and let them know that we paid for so many visits up front they kept adding late fees and all their other garbage fees. The next thing is that the people I spoke to, could not understand English or communicate it. It ends up they denied us.  It went to collections and going on the word of the attorneys that it would be an expense that would be reimbursed .  Well when we sent it to the attorneys, they said that when the funds went to the Trust for the vaccine injury that we could pull it from that. We submitted $xxx,ooo.oo for her care that we paid out of pocket and they told us the government would pay us $XX,000.00 to reimburse what we had been out of pocket. They started dropping the numbers and told us that we needed to settle so that we didn't take a risk of losing more. Let me tell you it is not enough and we can't use these funds for our personal care or hers.  This is for her medical care. I was in the process of taking this to the Arkansas state attorney generals office and we ended up moving here and our feet haven't stopped hitting the ground from treatments and care. Well here's what happened this past Thursday, my debit card got stopped ( hubbys stolen debit card) called Friday the bank they said they would research it and send new cards and expedite (we are in Ca our bank is in Fla. ). It was Saturday morning that the stink hit the fan when we tried to purchase gas in our van, that we had to drive 2 hours to pick up food for our daughter because of the damn vaccine that injured her. In the process of driving 2 hours I found out that care credit hired attorneys to sue me. Well they shut my account down, my only funds for taking care of my daughter. We were never notified by the bank, the trustee or anyone else not only did they shut it down but they shut everything down to where we are a few thousand dollars in the negative so any bills that we paid or food we bought we have insufficient funds fees on.  We have to have faith all this will be handled. God is in control. I hate the devil, loathe him he is a liar and a theif and we have a lot of liars and thieves in this world.
  The bright light to all this is the video below that I am posting. This is from last week we were praising God and giving Him glory as we always have for our daughters healing. I tell the devil beneath my feet you lying dirtbag and eat dust!
this all happened with in 2 days time.... 

Well for some reason I'm unable to upload the other videos there is apparently an issue with uploading more than one.

It is also my dear husbands birthday today Happy Birthday Allen I love you - you are precious to me!

It was 8 years ago the enemy tried to take our Abigaile on Allens birthday.  We stood our ground with prayer and the Word of God. My husband noticed last night the time that it has been 8 years and the same time and date stamp as her seizure from the vaccine.  
  It is difficult as a parent of a special needs child you simply can not feel adequate to give them all they need.  Our daughter might be further along had we done some things differently, but Im not going to live   in the past we are moving to the future. I keep asking for wisdom, I continue to ask him to have a heart like Ruth without resentment.  Our God is a good God and I know He loves us. It is difficult to see sometimes with all the waves and storms and turbulence of life. God is near.

I will upload in another post..... 
God is great! 


Wednesday, January 4, 2012

Welcome to my room with a view....

  I always wanted an ocean front or ocean view home- ha now I have one. Well, figuratively not reality.  I will take what I can get. I wanted to share that I am writing a book, I also want to promote my friend Amy Hessmans new book about my sweet girl Abigaile.

Well seizures and vaccine may have been where we started, but we have seriously progressed! We have seen so many miracles from God. I know He is touching our lives daily I so want to stay in His presence.  Please support Amy and get the word out, if you know adults, or children who have seizures have recently been diagnosed please, purchase this book for them. It isn't on the market yet but I will send out  a notification when it is. If you are interested in purchasing the book let me know and I will find out if its possible to purchase direct through Amy.  
I will also post later (when it is set up) the new blog that starts the beginning of our journey with Abigaile and the vaccine injury with a timeline to now. I will leave a lot of the details to the book- you WON'T want to miss it!  

blessings ,
Paris