We packed and moved! So here is what it was like in Rogers, Arkansas the Spring before we
Took a trip to Jacksonville Florida in March to see Dr. Jerry it looked like this in Jacksonville (it was actually warmer in NW Arkansas where we lived than it was in Jacksonville Fla.)
It was sooooo stinking cold we wore jackets the entire time... We stayed a few days after the long drive as we can't fly due to Abi.s issues (multiple reasons). We then spent a few hours with Dr. Jerry at his office working on Abi.s care plan and then decided while we were there we should spend a day or two at :
It was not enough time with Mickey or Minnie or Epcot Center , but we had to come back to reality : (
We thought that we would take our darling little girl who had just gotten her first Kidwalk for a test drive at one of the local malls. She was so cute, first time she had ever walked independent of someone trying to help her.
We came home after our trip and had to make the decision of how we would be able to provide adequate health services, therapy, treatments, advice and treatment plans from Physicians. We decided we would move to Ft Lauderdale! Soooo. we checked the job markets ( same jobs lots of transportation, project management, data management, etc) housing expenses typical to comparable to NW Arkansas, home school not a problem. We were so excited so the next teleconference we had with Doc we told him. He told us that he was making plans to move home, (where's home?) Southern California-
well
alrighty
then!!!!!!!!!!!!!!! Oh my goodness !!!!!! is what I was really saying now what?
So my husband and I talked about it, he had a decent job, good benefits, (not so good hours with serious hour abuse by the company) and he could take the Family Medical Leave act to help us to try this. We wanted to look at this short term. We were not sure the treatments would work but we do trust Dr. J. so we prayed about it. Allen spoke to his Wachter company that he put a lot of time and effort into and they told him they just so happened to have a company that is in Irvine, close to where we would be. They said go get settled make sure your daughter will do well and we have a position there that we can work you in to. Allen called them every week for three weeks (which is how long it took to pack, drive and move a child with special needs- it was a nightmare thank God I did not do the trip with just the girls and I. I am determined we would have never got here!). It was such a long trip.
We stayed in a cute (but dirty for what cost) vacation rental that the couple who rented to us ( a urologist and his wife) they came to meet us the first night we came to town. I asked if it would be okay to park the moving truck overnight. She assured me it would be and we would take our belongings to the storage the next day. They were out for the night and dropped by in their porche stopped to say hello (because they live down the street in Three Arch Bay) she is drinking and wearing no shoes (very friendly) and he is in the porche, takes one look at our moving truck and drives off with out her. I am certain they must have looked at us and thought we were the Beverly Hillbilllies !
my little cutie patootie at the vacation rental.
At Dr. Jin's office doing TMS.... which by the way stopped the seizures enough so she could function. She would sometimes have close to a hundred seizures per day... not always they varied depending on the allergens she would come in contact with and different triggers...
we spent as much down time as we could just looking at the beautiful California coastline.