Friday, April 26, 2013

We gotta have Faith.

  Okay enough said.  Well not quite.  We came to California over 2 years ago for our little sweetie.  We couldn't get adequate care for what she had a need for in Northwest Arkansas.  Her Doc when we met him was in Texas, then moved to Ft Lauderdale Fla., then when we looked at Ft Lauderdale Fla Doc decided he was moving to S. Cal. which is his home.

 We packed and moved! So here is what it was like in Rogers, Arkansas the Spring before we


Took a trip to Jacksonville Florida in March to see Dr. Jerry it looked like this in Jacksonville (it was actually warmer in NW Arkansas where we lived than it was in Jacksonville Fla.)


It was sooooo stinking cold we wore jackets the entire time...  We stayed a few days after the long drive as we can't fly due to Abi.s issues (multiple reasons).  We then spent a few hours with Dr. Jerry at his office working on Abi.s care plan and then decided while we were there we should spend a day or two at :

It was not enough time with Mickey or Minnie or Epcot Center , but we had to come back to reality : (

We thought that we would take our darling little girl who had just gotten her first Kidwalk for a test drive at one of the local malls. She was so cute, first time she had ever walked independent of someone trying to help her.


We came home after our trip and had to make the decision of how we would be able to provide adequate health services, therapy, treatments, advice and treatment plans from Physicians. We decided we would move to Ft Lauderdale!  Soooo. we checked the job markets ( same jobs lots of transportation, project management, data management, etc) housing expenses typical to comparable to NW Arkansas, home school not a problem. We were so excited so the next teleconference we had with Doc we told him. He told us that he was making plans to move home, (where's home?) Southern California-
  well
          alrighty
         
                    then!!!!!!!!!!!!!!!    Oh my goodness !!!!!! is what I was really saying now what?
So my husband and I talked about it, he had a decent job, good benefits, (not so good hours with serious hour abuse by the company) and he could take the Family Medical Leave act to help us to try this. We wanted to look at this short term. We were not sure the treatments would work but we do trust Dr. J. so we prayed about it. Allen spoke to his Wachter company that he put a lot of time and effort into and they told him they just so happened to have a company that is in Irvine, close to where we would be. They said go get settled make sure your daughter will do well and we have a position there that we can work you in to.  Allen called them every week for three weeks (which is how long it took to pack, drive and move a child with special needs- it was a nightmare thank God I did not do the trip with just the girls and I. I am determined we would have never got here!). It was such a long trip.
  We stayed in a cute (but dirty for what cost) vacation rental that the couple who rented to us ( a urologist and his wife) they came to meet us the first night we came to town. I asked if it would be okay to park the moving truck overnight. She assured me it would be and we would take our belongings to the storage the next day. They were out for the night and dropped by in their porche stopped to say hello (because they live down the street in Three Arch Bay) she is drinking and wearing no shoes (very friendly) and he is in the porche, takes one look at our moving truck and drives off with out her. I am certain they must have looked at us and thought we were the Beverly Hillbilllies !
my little cutie patootie at the vacation rental.

At Dr. Jin's office doing TMS.... which by the way stopped the seizures enough so she could function. She would sometimes have close to a hundred seizures per day... not always they varied depending on the allergens she would come in contact with and different triggers...


we spent as much down time as we could just looking at the beautiful California coastline.
We have celebrated tea party birthdays...

We have walked on the beach barefoot- first place I've gone to the beach on my birthday in February.  It always too cold back home in Arkansas to do anything. My birthday has always been miserable . Even here on my birthday it has rained. 

we have visited Dr. Jerry a few times, and thank you especially to the Kartzinel family for giving us a warm- welcoming for Thanksgiving and making us feel so welcome while we were here.



We have had so many awesome times and such great memories here.  We did not have the means to do this trip ourselves, in fact we were short the money for gas when we came. We had a couple of families that blessed us with just what we needed prior to when we left. God puts special people in our lives when we need them doesn't He?

I write this entry today, happy because of the progress I have seen with my little pumpkin.  I also have a great deal of some sadness.  While we love it here in Southern California we won't be able to stay here with out a miracle.  We are both employed but not making enough money to stay here and the home that we are currently living in the owner can sell his home right now in this market and make the most money that he can.  We gave him our blessings.

We have looked for homes now close to 2 maybe 3 months. The rental market prices are being elevated by all the people dumping their homes and running to rent. So, that leaves a minus of homes available to rent in the market. We have put 3-4 applications on homes and have been turned down because of our bad credit history due to all the medical debt that was not covered when our daughter had her vaccine reaction. We were lied to and told if the debt was related to the vaccine injury it would be paid, if we had loans from family so long as it was attributed to the vaccine injury it would be paid. I assure you, it was not.  I so wish I had not trusted anyone.

We have to move on. We have come here met many wonderful people. We watched both of our little girls grow and came here with 2 little girls and are leaving now with one little girl and a teenager. It has been a growing experience for our entire family. This rehab business is very tiring but so rewarding.  We were able to be blessed this past year even though doing lots of therapy and treatments we had a pool that we could come home and spend a little time in on a few of our days off.   We have about another month before we will be moved. Where do we go, we aren't sure yet.

When we go we may not have a job because after looking for full time employment for two years Allen can't transfer or apply for other positions in his company as he has not been there long enough to do so until after we have to move out.  I don't think its wise to rent an apartment and get stuck in a lease just to see if he can transfer or apply for employment elsewhere. We are looking at a couple of options we will see where God wants us. We also have some credit for some of our therapy. We won't have time to do anything prior to moving it is going to take all the effort I have to get packed so that we can move again. I'm pretty sure my children will be very diverse from all of this experience.

It is just another
DAY 
in Paradise !!!!