The BeachNest

Meet the BeachNest.net

Meet the Beachnest.net.  This is our home away from home.  Home was Arizona and now it is Texas.  

I don't miss Arizona I do miss being in California though. I know my little girl was doing really well there. We had a perfect climate, organic foods that were close and she could eat. 

We left Phoenix in the spring of 2014 to go find a coach for our daughter. This would give her the least restrictive environment. It would enable her to learn, play, eat and sleep.  I wanted to share her home away from home.

This has truly been a blessing. We have been able to keep her clothes, toys and school with us everywhere we go.

We were able to use a medical trust to help pay for the bus and spent 2014 and part of 2015 updating for handicap accessible and also taking out some of the allergen type materials. Now it is time to work on her daily accessible vehicle ( the white van we call the "Roadrunner). We are in need of updating this as soon as the weather permits and work will allow.

The Roadrunner with the Egg (yes we have names for all of them )

We are now stopped and planning and saving for the next trip of rehab.  We have enjoyed our time but it has not been a vacation by any means. It simply is easier to do than to do the motels and vacation rentals. We are thankful and blessed it is much less stress on Abi.  

I will be updating periodically with photos of our trip from Arkansas to California and then back again. 

While we were getting the coach modified for our daughter we stayed in a hotel. I was sewing some items for my daughter and accidentally sit a magnet on my computer. It (the hard drive) was gone in seconds. 

it took several hundred dollars and 24 hours to get it running with a new hard drive. In the process I cant access over 40,000 photos of progress of our daughter and most of our photos traveling and therapy. My heart is broken. We have gotten 2 estimates at over $900.00 each to pull the photos.  We tried a jump drive and a slip drive and couldn't get the table to spin. 

I feel my childrens photos are worth it- but I dont have anywhere near that kind of money to pull them off. So I wait and I pray and I ask God for them to be gotten off the drive and given back to me. Its unimportant how it happens. God can do it. 

Please stay tuned for our websites...

God bless

Our Year in 2015

www.BeachNest.net

     Our Year 2015 

   This year has certainly been a year of challenge. We spent from 2010- 2013 living in Southern California. We saw so many special things happen with our girl.  We saw her walk her very first time. We spent months at a time doing Physiotherapy. We spent months doing Hyperbaric Oxygen therapy. 

It was so expensive we had to leave. 

We decided to move to Phoenix, Arizona to be at least a day away from therapy and treatments instead of a thousand plus miles.   It was fine in Phoenix.  Nice warm winter. The cost of living not so bad as Southern California. But the cost wasn't the problem. Everything else was. 

This is us before we left. This was taken at Victory church in Springdale, Ar. where we were serving. 

Anyone who knows our family knows we pretty much roll with the punches.  Its sad to say but we have learned through our lives together that life doesn't always go as planned.  We learned this especially with Abigaile. While Abigaile was planned-  her life - her injuries from the adverse reaction to her vaccines and the many trials our family has experienced were not part of this initial equation. 

When we set out on this journey we had to find out what was going on with our daughter. This took a painful 3-4 years before we could grasp what had happened. It then took time to learn that the medical establishment who injured her could not be sued.  I just wanted her fixed and okay. Our lives were a living hell. We couldn't eat, couldn't sleep, could barely function. I was scared my baby was going to die. We also learned who our friends and family were. Really, no one. 

We were forced in to a desert like situation. Our daughter we would learn was having seizures. She was not just having a few seizures but hundreds of seizures per day. We had digestive issues, sleeping issues, not just developmental delays but literal wasting away issues.  We didn't really know what was going to happen.  We also weren't getting much help from Dr.s. they knew what was wrong- they didn't know what to do? We drove 4 hours to Childrens hospital in the middle of the night to be admitted to ICU?  So that Dr.s could drug induce her brain. She should have been air lifted. But she wasn't. 

We lived in S. Cal. met some great people, went to see the ocean.  We watched our daughter take her first steps at 9 years of age.  We still have a lot of work to do. 

Dana Point Tall ships festival. I learned to do as many free things with all the awful things.

I'm updating our blogs. We have deleted old websites and are making new ones.  I'll upload some new links. 

We were blessed to go see Solomon in Santa Monica with Starlight Foundation.  

We are waiting for winter to be over so we can hopefully move on to more therapy. Once we left California it was in our thoughts to find a portable home. Because of our daughters unique situation. It was just too difficult to try and maintain a home. We lost our home because of the medical expense our child had to be first. 

We decided to look for a motor coach that was dependable and would fit Abigailes needs. We spent 2-3 years looking, pricing and educating our selves on the operating systems.  We decided we had enough of the dust, sand, Haboobs, and our things we ruining in storage. It would be best if a coach could be purchased so we could keep Abbi,s things in them. We lived in hotels, vacation rentals, and it was no vacation. We stayed focused to help Abi. 

Stay tuned for the Beachnest- our gently used portable home.  It has been an education before I'm certainly glad and thankful I looked for years before we bought.